TED学院 | 早衰症患者Sam Berns讲述他的快乐人生哲学

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TED简介：Sam Berns是一位患有早衰症的17岁男孩，可是这并没有影响他快乐地生活。他有三条快乐人生的哲学，让他每天都充满希望和动力。

演讲者：Sam Berns

片长：12：45

https://v.qq.com/txp/iframe/player.html?width=500&height=375&auto=0&vid=q0140z0fd9j

内容拓展

Sam's advice

"My Philosophy," he said, "has three parts, essentially." Sam then prefaces his list of three with a quote from the movie Ferris Bueller: "Life moves pretty fast. If you don't stop and look around once in a while, you could miss it."

(1)"Be OK with what you ultimately can't do, because there is so much you CAN do."

Sam said he is very much aware of the things he can't do, like ride a roller coaster, but instead of focusing on that he instead focuses on the things he can do, and the things he is passionate about. Sam said you can put somethings that were impossible or out of reach before in the "can-do category" by making adjustments. To illustrate this point with an example he plays a clip of himself with the marching band, the story he opened with, which further illuminates his theme or his core message.

(2) "Surround yourself with people you want to be around."

Sam talked about the importance of having high-quality people and great friends in your life, and a close family."We see each other for who we are on the inside," Sam said of his friends and loved ones. You can see Sam gets choked up when talking about how the relationships in his life supercede even all the other positive aspects of his life. Our friends, our families, our communities, Sam said, are really the things that can make a huge difference in our lives.

(3) Keep moving forward.

Here Sam quotes Walt Disney:"Around here...we don't look backwards for very long. We keep moving forward, opening up new doors and doing new things." Sam said he was able to get through difficult times by always having something in the future to look forward to, even if it was just a small thing like a new comic book or a football game. "This mentality includes staying in a forward-thinking state of mind. I try hard not to waste energy feeling badly about myself, Sam said, because when I do I get stuck in a paradox where there is no room for happiness or any other emotion."

早衰症是一种极为罕见的疾病，全世界现仅有350例，而Sam Berns不幸是其中之一。“我应邀参加美国国家广播电台采访，主持人问，关于你的生活，最希望大家了解的是什么？我的回答很简单，是我的生活很快乐。虽然我有早衰症，但我大部分时间其实花在思考一些跟早衰症无关的事情上。

爱国者队老品Robert Kraft 说：“我很爱Sam Berns，认识他我变得更加富有。他是一个非常特別的年轻人，他的那些鼓舞人心的故事和积极乐观的生活态度深深地打动了我。”

不过倍受敬重的全球富豪Robert Kraft并不是Sam Berns唯一的粉丝。事实是他有很多粉丝。一部分原因跟他参演HBO记录片有关，这部记录Berns真实生活的影片原名《Sam的生活》，后正式更名为《儿童早衰症》。Berns还在2013年10月的TEDx会议上坦然谈到自己的病症。

他是一名来自Foxborough高中的学生，他还参加了军乐队，敲著特別设计的小军鼓。他沒有因为体重仅22.7kg或早衰的平均壽命只有13岁等現实而气妥。他甚至还參加了学校的返校舞会。最重要的是，他一直昂首挺胸，抬头做人。

Berns 说：“尽管我在生活中遇到了很多困难，但我不想別人为我感到难过。”

儿童早衰症的发病几率是約4百万到8百万婴儿中有1，世界上仅有200余名儿童患此病症。据研究，Lamin A基因的突变，是导致早衰症儿童细胞结构及功能逐渐退化的原因。由于老化迅速，這些儿童的皮下脂肪组织较少，头发脱落，身材瘦小，体重很难增加。他们很容易患上骨质酥松症，骨头变得更加脆弱。

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